Lessons from the NBA – Checking Hearts and Saving Lives

In basketball, we hear about “threes” all of the time.  A player lines up behind the arc, lets it go, and drains a three pointer.  This past week, “threes” took on a new meaning.  When the big news was supposed to be about the NBA (finally) starting its season, the stories were much more grave.

LaMarcus Aldridge of the Portland Trailblazers was diagnosed with Wolff-Parkinson-White Syndrome.  He underwent a medical procedure.  Jeff Green of the Boston Celtics discovered an aortic aneurysm and underwent surgery to correct the problem.   Chuck Hayes of the Sacramento Kings failed his physical due to a heart condition.  In a league of 450 players, almost one percent of them discovered a potentially fatal heart condition in the last week.

The NBA is no stranger to these heart conditions – Yinka Dare (died), Eddy Curry (surgery), Reggie Lewis (died), Ronny Turiaf (surgery), Kevin Duckworth (died), Cuttino Mobley (retired), Etan Thomas (surgery), Jason Collier (died), Robert Traylor (died), Zeijko Rebraca (retired), Fred Hoiberg (surgery) and Mikahil Torrance (retired).

These players had access to the best medical care.  Some of them were screened, some treated, and unfortunately, some died.  Seven years ago, our son, Simon, died suddenly.  He wasn’t a basketball player; he wasn’t screened; he was three months old.  Through testing, we discovered that he, like many of these athletes, had a heart condition.  His was Long QT Syndrome.

Following his death, we started to pay attention to the stories about the thousands of other kids — infants, toddlers and teens — who drop dead every year from sudden cardiac arrest.   The kids are sleeping in their cribs.  They are swimming with friends.  They are driving their car.  They are playing sports.  Their deaths are often times chalked up to SIDS, drowning, fatal auto accident and/or dehydration.

Sudden cardiac arrest is the indisputable leading cause of death of adults in the U.S.  It is also kills the most student athletes every year.  If our children are going to face these realities, why aren’t we checking hearts and saving lives?

In 2006, the NBA was the first league to institute a standard cardiac screening for all of its players.  As a result, the stories are less tragic.  Like the stories from last week, conditions are being detected and treated; fewer players are dropping dead.

Back in the 1980’s, the Italians started screening the hearts of all school-aged children.  As a result, they reduced the incidents of sudden cardiac death in kids by 89%.  Today, our organization, Simon’s Fund, along with other organizations around the country, are providing heart screenings to tens of thousands of students every year.  Collectively, we are finding that one out of every 100 students we screen has an undetected and potentially fatal heart condition.  These are reasons enough to begin screening our children’s hearts.

We screen our kids at birth for dozens of rare genetic conditions.  At school, all of our children get their eyes examined and hearing checked.  It’s time for us to follow in the footsteps of the NBA and the Italians and start checking our kids’ hearts too.

Jake Berman

“I attended a heart screening at Colonial Middle School when I was ten. I was in the marching band and liked to hike and rock climb. I was diagnosed with Wolff Parkinson White Syndrome. After my procedure, I kept doing the same things.”

Whitney Jones

Whitney’s commitment to heart health advocacy began at 10 years old when she and her mother, Rayna, were diagnosed with Long QT Syndrome during a Simon’s Heart screening at Downingtown West High School. Despite the diagnosis, Whitney pursued her passion for cheerleading and continued to thrive in the sport through her college years at St. Joseph’s University. After graduating, Whitney joined Stryker Instruments as the Senior Specialist for Off-Site Meeting and Events, where she skillfully orchestrates events that promote health and medical innovation. Further extending her impact, Whitney is an active member of the Simon’s Heart Young Professionals Committee, while her mother Rayna contributes her expertise on the Board of Directors.

Katie Asper

“I attended a heart screening at Upper Dublin High School when I was ten. I played soccer. I was diagnosed with Wolff Parkinson White Syndrome and had an ablation to fix the problem. I attend Temple University.”

Matthew Green

“I attended a heart screening in Mason, Ohio, when I was ten. I participated in baseball, basketball, and diving. I was diagnosed with an atrial septal defect. I had surgery to repair the hole and started wearing a protective shirt during activity. I am graduating from Miami University.”

Valerie Krawitz

“I attended a heart screening at Colonial Middle School when I was ten. I played baseball, soccer, and track. I was diagnosed with Long QT Syndrome and an atrial septal defect. I had heart surgery to repair the hole and I take medicine for the Long QT. I can’t play competitive sports like I once did, but found other activities. Next year, I’m attending Penn State University.”

Drew Harrington

“I attended a heart screening at Radnor High School when I was ten. I played lacrosse, tennis, and basketball. I was diagnosed with Wolff Parkinson White Syndrome. I used to feel my heart beat really fast, but just assumed it was fine. Coincidentally, on Simon’s 7th birthday, I had a procedure called an ablation. Today, my heart is fine and I attend the University of Richmond.”

Alaysia Keeley

“I attended a heart screening at Norristown High School when I was ten. I played softball and enjoyed going to the mall with my friends. I was diagnosed with Long QT Syndrome. I had to stop playing sports and drinking soda. Now, I take medication and live a normal life.”

Kyle McCabe

“I attended a heart screening at Norristown High School when I was ten. I played baseball, basketball, and football. I was diagnosed with Long QT Syndrome. I stopped playing sports to protect my heart, but I still manage to have fun.”

Melissa Fair

“I attended a heart screening at Colonial Middle School when I was ten. I loved dancing and hanging out with my friends. I was diagnosed with Partial Anomolous Pulmonary Venous Return and Atrial Septal Defect. The doctor told me that my life would have been cut short if I hadn’t found out. I’m graduating from Penn State University this year.”

Zach Steffens

“I attended a heart screening at Stillman Elementary School in Tenafly, N.J., when I was fourteen years old. I love running, Tae Kwon Do, and Armenian cultural dancing. I was diagnosed with a rare congenital defect called ALCAPA (Anomalous Left Coronary Artery from the Pulmonary Artery). I had open-heart surgery and recovered well. One month later, I suffered a cardiac arrest and an automated external defibrillator (AED) saved my life. I now have an implantable cardioverter defibrillator (ICD) and am healthier than ever. I will be attending The College of New Jersey and majoring in biomedical engineering.”

Annie FitzPatrick

“I went into sudden cardiac arrest at a local convenience store when I was 19 years old. My heart stopped and the only reason I am alive today is because an AED was readily available. I was diagnosed with Long QT Syndrome shortly after and was introduced to Darren and Phyllis with Simon’s Heart. I have been an active volunteer ever since. I went on to graduate Cum Laude from Drexel University with a double major in Business Analytics and Marketing and now work at a leading chemical company.”

Maeve Quinn

"I had a sudden cardiac arrest during softball tryouts at my high school. I was 15 years old. Thanks to the quick thinking of my coach and athletic trainer, they started doing CPR and using an AED immediately. This helped save my life. I had an implantable defibrillator surgically placed in case this happens again. I volunteer to educate people on the importance of screenings, learning CPR and the use of AEDs. Anyone can save a life like mine! I am planning on going to college for nursing."