Blog

The coroner said that Simon died of SIDS.  However, that answer was not good enough for us because it doesn’t really mean anything.  I’m glad that other people are starting to dig deeper into SIDS .  However, I’m very disappointed that this article only talks about back to sleep campaigns. ...

This is a great story about how raising awareness and leveraging the internet, in this case, facebook, can save a life.  Facebook Saved My Son’s Life

This is very exciting and a very proud moment for us at Simon’s Fund.  You rarely get a warning sign with Sudden Cardiac Arrest – but fainting is the # 1 indicator.  If this legislation passes, we will have a protocol in place for handling a child that faints, feels...

I took my cat to the veterinary today to have his teeth cleaned (yeah what of it) and an amazing thing happened while reading the informative pamphlet regarding the dental package.  At the Ardmore Animal Hospital, they complete a physical examination on the morning of the scheduled procedure.  From the...

Congrats to our friend, Dr. Joe Marek, for getting this study published.  He is proving that hearts screening for our kids are effective, affordable, managable and save lives.  This issue is debated, but there are no U.S. studies that show hearts screenings are ineffective, unaffordable, unmanagable and don’t save lives.  ...

When Crystal Thorton was singing “I want your ugly; I want your disease.” at the Lady Gaga concert this past week,  I’m pretty sure she wasn’t wishing for a condition that leads to sudden cardiac arrest.  Unfortunately, the condition runs in her family and until know, was undiagnosed. NASHVILLE, Tenn. – A...

When Dorothy’s house came crashing down, she had no idea where she’d landed.  Nothing was normal – everything was strange.  She began her journey back to normalcy.  Along the way, she met some characters that had a profound impact on her life.  They opened her eyes and broadened her perspective. ...

When Simon died, we got some very important advice – “get your hearts checked because kids aren’t supposed to die.” Over the past six years, we’ve discovered that this advice was unique, which is unfortunate. Most of the families that we talk to that have been striken with sudden cardiac...

We need more studies like this.  Whether they prove that more students are dying or not, we need to start speaking from a place of fact, not emotion.  We need to debate the findings, not the feelings.  If our kids are dying unecessarily, as I believe they are, we need...

While the academic debate clammers, and young athletes die, Dr. Rosenberg just decided to start screening kids.  Read on . . . http://www.wilx.com/news/headlines/118303304.html