Simon Sudman was born on October 21, 2004. He was the second child of Phyllis and Darren Sudman. His sister, Sally, was two.

Simon was a seemingly healthy baby boy. He weighed almost seven pounds and had an APGAR score of eight and nine. He was 50% for weight and 25% for height.

Every few hours, he’d finish a bottle (except for a four-hour stretch overnight). Simon smiled for the first time when he was seven weeks old. He died 47 days later.

At first, his cause of death was believed to be sudden infant death syndrome (SIDS), a typical conclusion when a baby dies suddenly and unexpectedly.

What happened next is the reason that Simon's Heart is here today. The family's pediatrician told Phyllis and Darren to get their hearts checked. They were worried about Sally. Unknown causes can be passed from parents to children. They wanted to make sure it wasn't heart-related.

Phyllis was diagnosed with Long QT Syndrome (LQTS), an arrhythmia that can cause fainting and sudden death. This condition has been linked to up to 15% of all SIDS deaths and is one of several conditions that cause sudden cardiac arrest in children.

There is not much more to share about Simon. He died way too soon.  Hopefully, his short life can help improve the lives of other kids.