The Lesson of Isaiah Austin

As kids, how many of you dreamed of making the winning shot, throwing the winning touchdown or hitting the winning homerun? Isaiah Austin, big man for the Baylor Bears did that already. He just finished up his collegiate career and was about to check off another dream – getting drafted to play in the NBA. However, that dream ended with a diagnoses of Marfan Syndrome, a genetic cardiac condition that can lead to sudden cardiac death.

Most people were probably unfamiliar with Marfan Syndrome until reading about Isaiah’s story. Similarly, most are unaware that heart conditions, like this one, are responsible for the deaths of thousands of children every year.  The American Academy of Pediatrics estimates that number to be around 2,000. The Center for Disease Control (CDC) and the National Institute of Health (NIH) recently created a sudden death in the youth registry to ascertain the real number.

After being forced to forfeit an NBA career, Isaiah will likely engage in some soul searching. As responsible parents, coaches, nurses and doctors, we should too. What can we be doing to detect these conditions and protect the health and safety of our student athletes?

Right now in this country, most of our children receive a physical before playing sports. This consists of a physical exam, medical/family history and a listen to the heart.

But is this really enough? How many physicals did Isaiah have throughout his scholastic career? How many times did a physician listen to his heart? That standard of care failed Isaiah. His potentially-fatal heart condition wasn’t detected until he received an ECG exam.

Fortunately for him, the NBA requires more. The League provides cardiac examinations for all players. This exam probably saved his life, as it did for several other NBA players like Jeff Green, Ronny Turiaf, LeMarcus Aldridge, to name a few.

It’s not that the NBA knows more than we do. We have access to the same science. Several recent studies show that adding an ECG exam to the physical and medical history is the best way to detect potentially-fatal heart conditions.

Last year, 2,471 NCAA athletes received an ECG exam with their standard pre-participation sports physical. Seven students were diagnosed with serious heart conditions, yet only two of them had an abnormal history and/or physical exam. In other words, 71% of these students were in the same boat as Isaiah. The exam wasn’t enough. The ECG exam discovered their potentially-fatal heart condition.

Fortunately, Isaiah’s story didn’t end in tragedy. He didn’t collapse and die. But should our kids have to make it to the doorstep of the NBA to receive this standard of care?

The ECG exam is cheap, non-invasive and effective. So, even though your kid may not realize the dream of becoming an NBA player, shouldn’t we at least care for him/her like one?

Jake Berman

“I attended a heart screening at Colonial Middle School when I was ten. I was in the marching band and liked to hike and rock climb. I was diagnosed with Wolff Parkinson White Syndrome. After my procedure, I kept doing the same things.”

Whitney Jones

Whitney’s commitment to heart health advocacy began at 10 years old when she and her mother, Rayna, were diagnosed with Long QT Syndrome during a Simon’s Heart screening at Downingtown West High School. Despite the diagnosis, Whitney pursued her passion for cheerleading and continued to thrive in the sport through her college years at St. Joseph’s University. After graduating, Whitney joined Stryker Instruments as the Senior Specialist for Off-Site Meeting and Events, where she skillfully orchestrates events that promote health and medical innovation. Further extending her impact, Whitney is an active member of the Simon’s Heart Young Professionals Committee, while her mother Rayna contributes her expertise on the Board of Directors.

Katie Asper

“I attended a heart screening at Upper Dublin High School when I was ten. I played soccer. I was diagnosed with Wolff Parkinson White Syndrome and had an ablation to fix the problem. I attend Temple University.”

Matthew Green

“I attended a heart screening in Mason, Ohio, when I was ten. I participated in baseball, basketball, and diving. I was diagnosed with an atrial septal defect. I had surgery to repair the hole and started wearing a protective shirt during activity. I am graduating from Miami University.”

Valerie Krawitz

“I attended a heart screening at Colonial Middle School when I was ten. I played baseball, soccer, and track. I was diagnosed with Long QT Syndrome and an atrial septal defect. I had heart surgery to repair the hole and I take medicine for the Long QT. I can’t play competitive sports like I once did, but found other activities. Next year, I’m attending Penn State University.”

Drew Harrington

“I attended a heart screening at Radnor High School when I was ten. I played lacrosse, tennis, and basketball. I was diagnosed with Wolff Parkinson White Syndrome. I used to feel my heart beat really fast, but just assumed it was fine. Coincidentally, on Simon’s 7th birthday, I had a procedure called an ablation. Today, my heart is fine and I attend the University of Richmond.”

Alaysia Keeley

“I attended a heart screening at Norristown High School when I was ten. I played softball and enjoyed going to the mall with my friends. I was diagnosed with Long QT Syndrome. I had to stop playing sports and drinking soda. Now, I take medication and live a normal life.”

Kyle McCabe

“I attended a heart screening at Norristown High School when I was ten. I played baseball, basketball, and football. I was diagnosed with Long QT Syndrome. I stopped playing sports to protect my heart, but I still manage to have fun.”

Melissa Fair

“I attended a heart screening at Colonial Middle School when I was ten. I loved dancing and hanging out with my friends. I was diagnosed with Partial Anomolous Pulmonary Venous Return and Atrial Septal Defect. The doctor told me that my life would have been cut short if I hadn’t found out. I’m graduating from Penn State University this year.”

Zach Steffens

“I attended a heart screening at Stillman Elementary School in Tenafly, N.J., when I was fourteen years old. I love running, Tae Kwon Do, and Armenian cultural dancing. I was diagnosed with a rare congenital defect called ALCAPA (Anomalous Left Coronary Artery from the Pulmonary Artery). I had open-heart surgery and recovered well. One month later, I suffered a cardiac arrest and an automated external defibrillator (AED) saved my life. I now have an implantable cardioverter defibrillator (ICD) and am healthier than ever. I will be attending The College of New Jersey and majoring in biomedical engineering.”

Annie FitzPatrick

“I went into sudden cardiac arrest at a local convenience store when I was 19 years old. My heart stopped and the only reason I am alive today is because an AED was readily available. I was diagnosed with Long QT Syndrome shortly after and was introduced to Darren and Phyllis with Simon’s Heart. I have been an active volunteer ever since. I went on to graduate Cum Laude from Drexel University with a double major in Business Analytics and Marketing and now work at a leading chemical company.”

Maeve Quinn

"I had a sudden cardiac arrest during softball tryouts at my high school. I was 15 years old. Thanks to the quick thinking of my coach and athletic trainer, they started doing CPR and using an AED immediately. This helped save my life. I had an implantable defibrillator surgically placed in case this happens again. I volunteer to educate people on the importance of screenings, learning CPR and the use of AEDs. Anyone can save a life like mine! I am planning on going to college for nursing."