HeartBytes: National Youth Cardiac Registry

HeartBytes is a national youth cardiac registry of seemingly healthy kids. It was developed and funded by Simon’s Heart to fill the void of cardiac data on children. The data and images are crowdsourced by heart screening organizations (Deborah Hospital Foundation and Safe Beat) and made available to qualified researchers (free of charge).

The registry has received IRB approval from Jefferson University Hospital. Download the Data Dictionary to review our data subset. Digital ECG recordings are also available.

Here is a list of all published research projects to date.

The Importance of Family History in  Pre-Participation Screening Program
Prevalence of Hypertension among US High School Students
Left Ventricular Hypertrophy in a College Athlete: Physiological or Pathological?
Parameters Associated with Abnormal Cardiac Conditions in Adolescent Athletes

If you are interested in gaining access to our data, please submit a research request.

Are you a screening group? Download the Android app.

HeartBytes was a collaborative effort. Pulse InfoFrame is the architect. INFINITT North America stores the images on its cloud-based platform. DataMed donated the ECG translation software. Amps LLC donated ECG conversion services.

The Victor Thay Family and Fred and Diane Smith generously donated funding to underwrite the licensing fees for screening organizations.