HeartBytes: National Youth Cardiac Registry
HeartBytes is a national youth cardiac registry of seemingly healthy kids. It was developed and funded by Simon’s Heart to fill the void of cardiac data on children. The data and images are crowdsourced by heart screening organizations (Deborah Hospital Foundation, Peyton Walker Foundation and Safe Beat) and made available to qualified researchers (free of charge).
The registry has received IRB approval from Jefferson University Hospital.
Download the Data Dictionary.
For organizations and institutions who use HeartBytes at their heart screenings, download the Android app.
HeartBytes was a collaborative effort. Pulse InfoFrame is the architect. INFINITT North America stores the images on its cloud-based platform. DataMed donated the ECG translation software. Amps LLC donated ECG conversion services.
The Victor Thay Family and Fred and Diane Smith generously donated funding to underwrite the licensing fees for screening organizations.