CoFounders’ Soiree Message

It’s been ten years since Simon died. Today, he would have been in fourth grade.

They say that time heals everything. This cliche is completely false. Time gives us the opportunity to make choices. It gives us the room to live in darkness or seek out light. It gives us the freedom to open up to friends or close out the world. It gives us the space to serve others or simply serve ourselves.

After Simon died, we had so many choices and so many questions. We didn’t have any answers. We did have friends. Smart friends. Compassionate friends. Dedicated friends.

If you were in our basement at one of those first few Simon’s Fund meetings, will you please stand up?

Can we ever thank you enough?

First of all, you’re still our friends. That’s a ten-year friendship. It’s also a friendship that has been challenged and tested. With us, you’ve endured an unimaginable tragedy. Thank you for coming to our rescue and standing at our side.

Secondly, look around this room. Ten years ago, when our kids were in diapers, what did you think was possible?

Ghana said, “You must be the change you wish to see in the world.” This statement is completely true.

When all of us decided that parents shouldn’t have to bury their children from detectable and treatable heart conditions, and that people needed to know that sudden cardiac arrest  isn’t just an adult thing . . . where did you think it would lead?

Did you think that we’d be celebrating in a room with 470 people?

Did you think that we’d provide free heart screenings to almost 11,000 children?

Did you think that we’d author a law to protect student athletes from sudden cardiac arrest and that the law would be passed in six states and introduced in several others?

Did you think that we’d have NBA players, and actors, and Olympic gold medalists helping us spread our message?

Did you think that we’d have a network of over fifty physicians around the country who believe in youth heart screenings?

Did you think that international brands and national corporations would be recognizing us?

Did you think that we would be the first group to build a database to gather and store cardiac informant on seemingly healthy students so that researchers could do their job?

We did not. We had no idea where all of this would go. However, because of the people sitting in this room, both old friends and new, we are here, and we’ve accomplished so much together.

You’ve connected us with school districts. You’ve liked us on Facebook and followed us on Twitter. If you haven’t, feel free to do so now. You’re share our message with your friends, colleagues, constituents and customers. You’ve voted for me again, and again and again. You’ve asked restaurants for gift certificates and foundations for money. You’ve unloaded and loaded massage tables, machines and file boxes. You’ve taken vitals, listened to hearts and read ECGs. You’ve donated products and services. You’ve talked to television networks and radio stations. You’ve run, walked, danced or swung a golf club. You’ve come to us with ideas. You’ve shared advice, perspective and expertise. You’ve fund absolutely everything.

Most of all, you have helped us heal and be the change that we wish to see in the world.

Everyone who made tonight possible is listed on Page 12 of the Soiree Book. We owe all of you so much. However, there are a few people that we must mention.

Melissa Caruso was a stranger two years ago. Now, she is co-chairing our auction committee.

Danielle Nurick came into our lives right after Simon died. She’s been a tremendous friend ever since and this year, she took charge of our sponsorships. If you didn’t hear from her, I am shocked. She will find you.

Dorothy Wilson was there when I was born and when Simon was born. She’s known my parents longer that I have. She and Arrangements Unlimited have been donating their time to organize and decorate our events from the beginning.

My colleagues at eBay Enterprise have given me the support and flexibility at the office so that I still have something left to give to Simon’s Fund. You also came out tonight in force – you filled five tables!

Jill Deeves came into our life three years ago. We needed help and were ready to make an offer when our neighbor said, “Wait, you must meet Jill.” Boy are we glad that we waited. Jill has become a part of our family. She is also an integral part of Simon’s Fund. And, that woman who introduced us, it’s her birthday. Happy Birthday, Tara.

Sally and Jaden, you may not even be in the room right now, but we want to thank you for being so patient and so understanding. We know that so much attention is given to Simon’s Fund. However, we want you to know that nothing is more important to us than seeing your smile (and yes, even your glares), everyday. We are so proud of you both.

As co-founders, the spotlight is always on us. Tonight, we are shining it on you. Because of you, Simon’s Fund has accomplished so much. We have saved lives.

We look forward to continuing this journey with you. We know that in a few years, every student will get a heart screening. We don’t know how, but we’re pretty confident, because with you by our side, we have a pretty good track record of success.

Thank you for sharing your night and heart with us tonight. Thank you for believing in our vision. Thank you for helping us check hearts and save lives.

Jake Berman

“I attended a heart screening at Colonial Middle School when I was ten. I was in the marching band and liked to hike and rock climb. I was diagnosed with Wolff Parkinson White Syndrome. After my procedure, I kept doing the same things.”

Whitney Jones

Whitney’s commitment to heart health advocacy began at 10 years old when she and her mother, Rayna, were diagnosed with Long QT Syndrome during a Simon’s Heart screening at Downingtown West High School. Despite the diagnosis, Whitney pursued her passion for cheerleading and continued to thrive in the sport through her college years at St. Joseph’s University. After graduating, Whitney joined Stryker Instruments as the Senior Specialist for Off-Site Meeting and Events, where she skillfully orchestrates events that promote health and medical innovation. Further extending her impact, Whitney is an active member of the Simon’s Heart Young Professionals Committee, while her mother Rayna contributes her expertise on the Board of Directors.

Katie Asper

“I attended a heart screening at Upper Dublin High School when I was ten. I played soccer. I was diagnosed with Wolff Parkinson White Syndrome and had an ablation to fix the problem. I attend Temple University.”

Matthew Green

“I attended a heart screening in Mason, Ohio, when I was ten. I participated in baseball, basketball, and diving. I was diagnosed with an atrial septal defect. I had surgery to repair the hole and started wearing a protective shirt during activity. I am graduating from Miami University.”

Valerie Krawitz

“I attended a heart screening at Colonial Middle School when I was ten. I played baseball, soccer, and track. I was diagnosed with Long QT Syndrome and an atrial septal defect. I had heart surgery to repair the hole and I take medicine for the Long QT. I can’t play competitive sports like I once did, but found other activities. Next year, I’m attending Penn State University.”

Drew Harrington

“I attended a heart screening at Radnor High School when I was ten. I played lacrosse, tennis, and basketball. I was diagnosed with Wolff Parkinson White Syndrome. I used to feel my heart beat really fast, but just assumed it was fine. Coincidentally, on Simon’s 7th birthday, I had a procedure called an ablation. Today, my heart is fine and I attend the University of Richmond.”

Alaysia Keeley

“I attended a heart screening at Norristown High School when I was ten. I played softball and enjoyed going to the mall with my friends. I was diagnosed with Long QT Syndrome. I had to stop playing sports and drinking soda. Now, I take medication and live a normal life.”

Kyle McCabe

“I attended a heart screening at Norristown High School when I was ten. I played baseball, basketball, and football. I was diagnosed with Long QT Syndrome. I stopped playing sports to protect my heart, but I still manage to have fun.”

Melissa Fair

“I attended a heart screening at Colonial Middle School when I was ten. I loved dancing and hanging out with my friends. I was diagnosed with Partial Anomolous Pulmonary Venous Return and Atrial Septal Defect. The doctor told me that my life would have been cut short if I hadn’t found out. I’m graduating from Penn State University this year.”

Zach Steffens

“I attended a heart screening at Stillman Elementary School in Tenafly, N.J., when I was fourteen years old. I love running, Tae Kwon Do, and Armenian cultural dancing. I was diagnosed with a rare congenital defect called ALCAPA (Anomalous Left Coronary Artery from the Pulmonary Artery). I had open-heart surgery and recovered well. One month later, I suffered a cardiac arrest and an automated external defibrillator (AED) saved my life. I now have an implantable cardioverter defibrillator (ICD) and am healthier than ever. I will be attending The College of New Jersey and majoring in biomedical engineering.”

Annie FitzPatrick

“I went into sudden cardiac arrest at a local convenience store when I was 19 years old. My heart stopped and the only reason I am alive today is because an AED was readily available. I was diagnosed with Long QT Syndrome shortly after and was introduced to Darren and Phyllis with Simon’s Heart. I have been an active volunteer ever since. I went on to graduate Cum Laude from Drexel University with a double major in Business Analytics and Marketing and now work at a leading chemical company.”

Maeve Quinn

"I had a sudden cardiac arrest during softball tryouts at my high school. I was 15 years old. Thanks to the quick thinking of my coach and athletic trainer, they started doing CPR and using an AED immediately. This helped save my life. I had an implantable defibrillator surgically placed in case this happens again. I volunteer to educate people on the importance of screenings, learning CPR and the use of AEDs. Anyone can save a life like mine! I am planning on going to college for nursing."