The Next Chapter – A New Leader

Today marks another milestone in my journey since the loss of Simon. I step down as Executive Director of Simon’s Heart and welcome Jennifer Parrado with open arms.

Jenn comes to us from the Leukemia & Lymphoma Society where she served as the Regional Advancement Director. She has spent the last ten years raising awareness, advocating, and fundraising for some amazing causes. So, she’s qualified. More importantly, she is smart, considerate, passionate, humble and witty. She possesses the qualities we value.

It was June 2012, right after the Sudden Cardiac Arrest Prevention Act was signed into law. Simon’s Heart and Representative Mike Vereb made Pennsylvania the first state to pass legislation to protect student athletes from sudden cardiac arrest.  The law requires coaches, parents and students to learn about the risks and warning signs of sudden cardiac arrest. Athletes who are symptomatic must be removed from play and cannot return until cleared by a licensed medical professional.

As we celebrated this major accomplishment, the board asked me a question. If you can host heart screenings and pass a law as a part-time volunteer, what can we accomplish if you do this full time? I had major reservations about making a career out of my loss. I’ll never forget the advice my friend and business partner gave me. Imagine yourself five years from now. Our business and Simon’s Heart are both doing great. Which one makes you more excited and proud?  That’s where you should work. I am so blessed to have wise friends.

The Sudden Cardiac Arrest Prevention Act has become law in fourteen states. Every year, two million student athletes across the country, along with their parents and coaches, learn about sudden cardiac arrest. Over one million coaches have been educated by our training video. We have provided heart screenings for 18,000 + students. Data from our registry has been used to publish seven abstracts and two manuscripts. We partnered with the NCAA to fund research. We introduced a new way to teach kids about CPR using music and balls. We placed hundreds of AED devices in youth-related facilities through partnerships with sports teams and our crowdfunding site. We provide educational materials to youth organizations around the country to educate their students.

I am so proud of this organization – family, co-workers, supporters and partners – for all of these accomplishments. In the face of unimaginable tragedy, we responded with innovative programs that protect hearts and save lives. It’s hard to believe it’s been fifteen years. I can still feel the energy and urgency that existed when we began.

How do I know I’m making the right decision to step down? I don’t. But, I try to imagine Simon’s Heart five years from now. It’s bigger and better. It has impacted more families and helped change a standard of care. Jenn and Jill are running the show (with others too, hopefully). All of you are rallying behind them. I am contributing as a co-founder and board member.

This vision makes me the most proud and excited. It reveals an impactful, sustainable and lifesaving organization.

Jenn and Jill, my family and the board of directors can’t wait to see the places you’ll go. We’ll be right beside you.

Jake Berman

“I attended a heart screening at Colonial Middle School when I was ten. I was in the marching band and liked to hike and rock climb. I was diagnosed with Wolff Parkinson White Syndrome. After my procedure, I kept doing the same things.”

Whitney Jones

Whitney’s commitment to heart health advocacy began at 10 years old when she and her mother, Rayna, were diagnosed with Long QT Syndrome during a Simon’s Heart screening at Downingtown West High School. Despite the diagnosis, Whitney pursued her passion for cheerleading and continued to thrive in the sport through her college years at St. Joseph’s University. After graduating, Whitney joined Stryker Instruments as the Senior Specialist for Off-Site Meeting and Events, where she skillfully orchestrates events that promote health and medical innovation. Further extending her impact, Whitney is an active member of the Simon’s Heart Young Professionals Committee, while her mother Rayna contributes her expertise on the Board of Directors.

Katie Asper

“I attended a heart screening at Upper Dublin High School when I was ten. I played soccer. I was diagnosed with Wolff Parkinson White Syndrome and had an ablation to fix the problem. I attend Temple University.”

Matthew Green

“I attended a heart screening in Mason, Ohio, when I was ten. I participated in baseball, basketball, and diving. I was diagnosed with an atrial septal defect. I had surgery to repair the hole and started wearing a protective shirt during activity. I am graduating from Miami University.”

Valerie Krawitz

“I attended a heart screening at Colonial Middle School when I was ten. I played baseball, soccer, and track. I was diagnosed with Long QT Syndrome and an atrial septal defect. I had heart surgery to repair the hole and I take medicine for the Long QT. I can’t play competitive sports like I once did, but found other activities. Next year, I’m attending Penn State University.”

Drew Harrington

“I attended a heart screening at Radnor High School when I was ten. I played lacrosse, tennis, and basketball. I was diagnosed with Wolff Parkinson White Syndrome. I used to feel my heart beat really fast, but just assumed it was fine. Coincidentally, on Simon’s 7th birthday, I had a procedure called an ablation. Today, my heart is fine and I attend the University of Richmond.”

Alaysia Keeley

“I attended a heart screening at Norristown High School when I was ten. I played softball and enjoyed going to the mall with my friends. I was diagnosed with Long QT Syndrome. I had to stop playing sports and drinking soda. Now, I take medication and live a normal life.”

Kyle McCabe

“I attended a heart screening at Norristown High School when I was ten. I played baseball, basketball, and football. I was diagnosed with Long QT Syndrome. I stopped playing sports to protect my heart, but I still manage to have fun.”

Melissa Fair

“I attended a heart screening at Colonial Middle School when I was ten. I loved dancing and hanging out with my friends. I was diagnosed with Partial Anomolous Pulmonary Venous Return and Atrial Septal Defect. The doctor told me that my life would have been cut short if I hadn’t found out. I’m graduating from Penn State University this year.”

Zach Steffens

“I attended a heart screening at Stillman Elementary School in Tenafly, N.J., when I was fourteen years old. I love running, Tae Kwon Do, and Armenian cultural dancing. I was diagnosed with a rare congenital defect called ALCAPA (Anomalous Left Coronary Artery from the Pulmonary Artery). I had open-heart surgery and recovered well. One month later, I suffered a cardiac arrest and an automated external defibrillator (AED) saved my life. I now have an implantable cardioverter defibrillator (ICD) and am healthier than ever. I will be attending The College of New Jersey and majoring in biomedical engineering.”

Annie FitzPatrick

“I went into sudden cardiac arrest at a local convenience store when I was 19 years old. My heart stopped and the only reason I am alive today is because an AED was readily available. I was diagnosed with Long QT Syndrome shortly after and was introduced to Darren and Phyllis with Simon’s Heart. I have been an active volunteer ever since. I went on to graduate Cum Laude from Drexel University with a double major in Business Analytics and Marketing and now work at a leading chemical company.”

Maeve Quinn

"I had a sudden cardiac arrest during softball tryouts at my high school. I was 15 years old. Thanks to the quick thinking of my coach and athletic trainer, they started doing CPR and using an AED immediately. This helped save my life. I had an implantable defibrillator surgically placed in case this happens again. I volunteer to educate people on the importance of screenings, learning CPR and the use of AEDs. Anyone can save a life like mine! I am planning on going to college for nursing."