Blog

What Do You Get . . . .

What do you get a seven year old boy for his birthday?  Where do you have the party?  Who do you invite? These are the questions that I expected to be grappling with on a day like today – Simon’s birthday.  For me, and I can only speak for me...

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A Picture is Worth . . .

Last night was Bubby’s 65th birthday party.  I flew down to Tampa to surprise her.  You wouldn’t have made the trip.  Mom, Sally and Jaden stayed home.  Aunt Meredith put together a great video.  Of course, you were in it. As we strolled down memory lane, looking at pictures from...

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Pulse Ox – What It Means to Simon’s Fund

A Federal Government Advisory Committee is urging the use of this test.  Two Governors (Maryland and New Jersey) recently signed laws mandating the use of this test.  Clearly, the hearts of newborns are front of mind. These laws require that a Pulse Ox test be performed on all newborns.  The test...

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Harry Potter Screening Did Not Save Lives

Thousands of kids came out for the Harry Potter screening this past week.  While they were all entertained, none of them left any healthier or safer.  You’ll have to come to a Simon’s Fund heart screening for that where 1 out of every 100 kids will discover a heart condition. It may...

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Is it possible that cats receive better health care than our children?

I took my cat to the veterinary today to have his teeth cleaned (yeah what of it) and an amazing thing happened while reading the informative pamphlet regarding the dental package.  At the Ardmore Animal Hospital, they complete a physical examination on the morning of the scheduled procedure.  From the...

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Our Yellow Brick Road

When Dorothy’s house came crashing down, she had no idea where she’d landed.  Nothing was normal – everything was strange.  She began her journey back to normalcy.  Along the way, she met some characters that had a profound impact on her life.  They opened her eyes and broadened her perspective. ...

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Sudden Death Should Trigger Family Check Ups

When Simon died, we got some very important advice – “get your hearts checked because kids aren’t supposed to die.” Over the past six years, we’ve discovered that this advice was unique, which is unfortunate. Most of the families that we talk to that have been striken with sudden cardiac...

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Response to Sycamore

The Sycamore school board recently declined an offer from Simon’s Fund to pay for and organize a heart screening for the students in the District.  The board said that (1) they cannot support mass heart screenings because of the American Heart Association; and (2) that this is a matter for...

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The Real “March Madness”: Six Students Drop Dead

It started last night with Selection Sunday.  It builds this week with brackets and office pools.  It explodes this weekend with the first round of the NCAA Tournament as we march to the Final Four.  It’s a great time of year . . . as long as you are focused on college...

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40,000,000 Kids Die of Sudden Cardiac Arrest Every Year

What, you don’t believe me?  My figure is only 39,999,960 more than the figure thrown around today by the medical experts called upon to discuss sudden cardiac arrest and student athletes.  As crazy as this sounds, their figure is much more misleading because we expect their figure to be rooted in research, science and...

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