Best Resources Page

Sudden Infant Death Syndrome
Advocacy Group: CJ First Candle 
Research: Is There a Relation between Long QT and SIDS

Long QT Syndrome
Advocacy Group: SADS Foundation
About: What is Long QT Syndrome?

Sudden Cardiac Arrest
Advocacy Group: Parent Heart Watch 

Hypertrophic Cardiomyopathy
Advocacy: Children’s Cardiomyopathy Foundation
Research: Hypertrophic Cardiomyopathy in Youth Athletes
About: Cardiomyopathy and Your Child

  • HCM:
  • SIDS:
  • Myocarditis:
  • AED Laws –
  • anomalous coronary artery, arrythmogenic right ventricular dysplasia (ARVD), hypertrophic cardiomyopathy (HCM), left ventricular non-compaction, and Marfan syndrome.An electrical defect interrupts the heart’s rhythm. The more common electrical conditions are Brugada syndrome, complete heart block, Long QT syndrome, and Wolff-Parkinson White syndrome (WPW).Commotio cordis is the one condition that has no warning signs and is not genetic. It occurs from a blow to the chest by a ball or other blunt object. It strikes at the exact wrong time causing the heart to go into a fatal heartbeat (arrhythmia).Most conditions can be detected with an electrocardiogram (ECG), but many of the structural conditions can only be diagnosed with an echocardiogram (Echo). The treatment varies by condition and severity. Many can be treated with medication and lifestyle changes. The more severe cases may be treated with a pacemaker, implanted defibrillator (ICD), or corrective surgery.

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