A Party From the Heart

Last night, an organization of twenty-five women, threw a party for Simon’s Fund.  They’ve been having fundraisers for nonprofit organizations for 25 years. Over 200 people gathered to bid on great auction items, eat and drink and watch a fashion show presented by Neiman Marcus.  We are so grateful.  Here is the speech that Phyllis shared.

When your child dies, you feel alone.  No one can comprehend the grief.  Few know what to say.  And then one day, you start to encounter random acts of kindness from strangers that would never have come your way.

The sixty-something man that came to our house to lead a shiva minyan – his first time, ever.  The woman who created our ad book for the very first Simon’s Soiree. The student with a heart condition that reached out to volunteer after reading about Simon’s Fund in the paper. The company that donated medical equipment from a cold call.

Then, there’s the story about a bunch of women who just want to help.  For 25 years, From the Heart has been raising money for local nonprofits.  They’ve channeled their time, energy and money toward helping women in need, people living with disease or disability, and children.  Their network has raised over $1,000,000.

We are so humbled and honored to be this year’s beneficiary.  Thankfully, most of you in this room will never know what it feels like to lose a child.  However, we hope that everyone in this room will one day feel what it is like to be honored by a group of woman with big hearts.  It fills your heart.  It soothes your soul.

Thank you so much for honoring our son, Simon, tonight.  He would have been seven years old and finishing first grade.  Thanks for recognizing the efforts and accomplishments of Simon’s Fund.  Thanks for helping us raise awareness.  Thanks for helping us raise money so that we can continue to check hearts and save lives.

We’ve prepared a brief video to share with you tonight, but want to take a moment to introduce you to three special groups of people.

First, will all of the people that have attended a Simon’s Fund event in the past please stand up.  These are the people that have funded the heart screenings that have checked almost 4,000 children.  Thanks from the bottom of our heart.

Second, will the Simon’s Fund board members and Jill Deeves please stand up.  This dedicated group has helped position Simon’s Fund so that it can impact the lives of children through heart screenings, cookie drives, medical partnership and advocacy efforts.

Finally, our third group.  This is a very special group.  Alaysia Keeley, Drew Harrington and Melissa Fair. They are three of the 36 children that have discovered heart conditions at our heart screenings.

Jake Berman

“I attended a heart screening at Colonial Middle School when I was ten. I was in the marching band and liked to hike and rock climb. I was diagnosed with Wolff Parkinson White Syndrome. After my procedure, I kept doing the same things.”

Whitney Jones

Whitney’s commitment to heart health advocacy began at 10 years old when she and her mother, Rayna, were diagnosed with Long QT Syndrome during a Simon’s Heart screening at Downingtown West High School. Despite the diagnosis, Whitney pursued her passion for cheerleading and continued to thrive in the sport through her college years at St. Joseph’s University. After graduating, Whitney joined Stryker Instruments as the Senior Specialist for Off-Site Meeting and Events, where she skillfully orchestrates events that promote health and medical innovation. Further extending her impact, Whitney is an active member of the Simon’s Heart Young Professionals Committee, while her mother Rayna contributes her expertise on the Board of Directors.

Katie Asper

“I attended a heart screening at Upper Dublin High School when I was ten. I played soccer. I was diagnosed with Wolff Parkinson White Syndrome and had an ablation to fix the problem. I attend Temple University.”

Matthew Green

“I attended a heart screening in Mason, Ohio, when I was ten. I participated in baseball, basketball, and diving. I was diagnosed with an atrial septal defect. I had surgery to repair the hole and started wearing a protective shirt during activity. I am graduating from Miami University.”

Valerie Krawitz

“I attended a heart screening at Colonial Middle School when I was ten. I played baseball, soccer, and track. I was diagnosed with Long QT Syndrome and an atrial septal defect. I had heart surgery to repair the hole and I take medicine for the Long QT. I can’t play competitive sports like I once did, but found other activities. Next year, I’m attending Penn State University.”

Drew Harrington

“I attended a heart screening at Radnor High School when I was ten. I played lacrosse, tennis, and basketball. I was diagnosed with Wolff Parkinson White Syndrome. I used to feel my heart beat really fast, but just assumed it was fine. Coincidentally, on Simon’s 7th birthday, I had a procedure called an ablation. Today, my heart is fine and I attend the University of Richmond.”

Alaysia Keeley

“I attended a heart screening at Norristown High School when I was ten. I played softball and enjoyed going to the mall with my friends. I was diagnosed with Long QT Syndrome. I had to stop playing sports and drinking soda. Now, I take medication and live a normal life.”

Kyle McCabe

“I attended a heart screening at Norristown High School when I was ten. I played baseball, basketball, and football. I was diagnosed with Long QT Syndrome. I stopped playing sports to protect my heart, but I still manage to have fun.”

Melissa Fair

“I attended a heart screening at Colonial Middle School when I was ten. I loved dancing and hanging out with my friends. I was diagnosed with Partial Anomolous Pulmonary Venous Return and Atrial Septal Defect. The doctor told me that my life would have been cut short if I hadn’t found out. I’m graduating from Penn State University this year.”

Zach Steffens

“I attended a heart screening at Stillman Elementary School in Tenafly, N.J., when I was fourteen years old. I love running, Tae Kwon Do, and Armenian cultural dancing. I was diagnosed with a rare congenital defect called ALCAPA (Anomalous Left Coronary Artery from the Pulmonary Artery). I had open-heart surgery and recovered well. One month later, I suffered a cardiac arrest and an automated external defibrillator (AED) saved my life. I now have an implantable cardioverter defibrillator (ICD) and am healthier than ever. I will be attending The College of New Jersey and majoring in biomedical engineering.”

Annie FitzPatrick

“I went into sudden cardiac arrest at a local convenience store when I was 19 years old. My heart stopped and the only reason I am alive today is because an AED was readily available. I was diagnosed with Long QT Syndrome shortly after and was introduced to Darren and Phyllis with Simon’s Heart. I have been an active volunteer ever since. I went on to graduate Cum Laude from Drexel University with a double major in Business Analytics and Marketing and now work at a leading chemical company.”

Maeve Quinn

"I had a sudden cardiac arrest during softball tryouts at my high school. I was 15 years old. Thanks to the quick thinking of my coach and athletic trainer, they started doing CPR and using an AED immediately. This helped save my life. I had an implantable defibrillator surgically placed in case this happens again. I volunteer to educate people on the importance of screenings, learning CPR and the use of AEDs. Anyone can save a life like mine! I am planning on going to college for nursing."